Society
Health
Summer Course
Cuidados paliativos pediátricos y de adultos: un derecho tan desconocido

Cuidados paliativos pediátricos y de adultos: un derecho tan desconocido

30.Jun - 01. Jul, 2025 Cod. O10-25

El objetivo de este Curso de Verano es difundir el conocimiento sobre los cuidados paliativos en la sociedad y dar a conocer nuestro derecho como ciudadanas y ciudadanos.

Description

Los cuidados paliativos nos demuestran que podemos cuidar cuando no se puede curar. Que incluso cuando la vida misma corre un peligro de muerte, podemos fortalecerla y cuidarla. Los cuidados paliativos, en momentos tan duros por los que nadie quiere pasar, nos ofrecen protección, capacidad para responder a diferentes tipos de dolor y necesidades, y una gran profesionalidad.

Pero este derecho que se nos ofrece por ley, es muy desconocido para la ciudadanía. También es a menudo desconocida en la formación de profesionales sanitarios y en las organizaciones sanitarias. Y si atendemos al cuidado infantil, los cuidados paliativos pediátricos aún están por desarrollar en la Comunidad Autónoma del País Vasco. Estamos convencidas y convencidos que el desarrollo de cuidados paliativos nos fortalecerá y humanizará como sociedad, evitando muchos sufrimientos evitables.

El objetivo de este Curso de Verano es difundir el conocimiento sobre los cuidados paliativos en la sociedad y dar a conocer nuestro derecho como ciudadanas y ciudadanos. Se reunirán las experiencias de personas que han podido conocer el servicio de los cuidados paliativos, tanto en la infancia como en la edad adulta, con el conocimiento de profesionales expertos en cuidados paliativos. Y a través de todos estos puntos de vista, se informará de los beneficios que traerá el desarrollo de los cuidados paliativos.

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Objectives

Difundir los derechos que tiene la ciudadanía a recibir cuidados paliativos.

Informar sobre la necesidad de prestación de cuidados paliativos infantiles.

Reflexionar sobre la estructura organizativa territorial de los cuidados paliativos.

Activity directed to

  • All public
  • University student
  • Professionals

In collaboration with

  • Eusko Jaurlaritza. Osasuna saila
  • Osakidetza
  • Eusko Jaurlaritza Hizkuntza eta Politika Saila

Program

30-06-2025

09:00 - 09:15

Harrera

09:15 - 09:25

Presentation by the Director of the activity

  • Nere Erkiaga Laka | Hil Argi Elkartea - Zuzendaria
09:25 - 11:00

Round table: “Herritarren esperientziatik: Haurrek zaintza aringarriak jasotzeko duten eskubidea“

  • Nere Erkiaga Laka | Hil Argi Elkartea - Moderatzailea (Moderator)
  • Amaia Madariaga Zabala | Herritarra
  • Bittor Asteinza Blanco
11:00 - 11:30

Break

11:30 - 12:15

“¿Cómo funciona la Unidad de Atención Domiciliaria Pediátrica y Cuidados Paliativos Pediátricos de Cruces?“

  • Jesús Sánchez Etxaniz | Hospital Universitario de Cruces. Osakidetza - Responsable de la Unidad de Hospitalización a Domicilio y Cuidados Paliativos Pediátricos
12:15 - 13:00

“¿Qué organización mínima sería necesaria para un servicio de cuidados paliativos pediátricos de calidad en la CAV?"“

  • Iñigo de Noriega Echevarria | Hospital Infantil Universitario Niño Jesús. Madrid - Miembro del Equipo médico de la Unidad de Cuidados Paliativos Pediátricos
13:00 - 14:00

Round table: “La necesidad de un servicio autonómico de cuidados paliativos pediátricos“

  • Jesús Sánchez Etxaniz | Hospital Universitario de Cruces. Osakidetza - Responsable de la Unidad de Hospitalización a Domicilio y Cuidados Paliativos Pediátricos
  • Iñigo de Noriega Echevarria | Hospital Infantil Universitario Niño Jesús. Madrid - Miembro del Equipo médico de la Unidad de Cuidados Paliativos Pediátricos
  • Nere Erkiaga Laka | Hil Argi Elkartea - Zuzendaria

01-07-2025

09:00 - 09:15

Presentation by the Director of the activity

  • Nere Erkiaga Laka | Hil Argi Elkartea - Zuzendaria
09:15 - 11:00

Round table: “Herritarren esperientziatik: Herritarrek zaintza aringarriak jasotzeko duten eskubidea“

  • Nere Erkiaga Laka | Hil Argi Elkartea - Moderatzailea (Moderator)
  • Nerea Ortiz Larrinaga | Zaintza aringarrien zerbitzua ezagutu duen herritarra
  • Leire Markuerkiaga Olabe | Zaintza aringarrien zerbitzua ezagutu duen herritarra
11:00 - 11:30

Break

11:30 - 12:15

“Debagoienako OSIa: Nola lan egiten du hiriburuetatik kanpoko zaintza aringarrietako zerbitzu batek?“

  • Iñaki Peña Bandrés | Arrasateko Ospitaleko Zaintza Aringarrietako Unitatea - Arduraduna
12:15 - 13:00

“¿Qué organización mínima sería necesaria para un servicio de cuidados paliativos de calidad en la CAV?“

  • Alberto Meléndez Gracia | Unidad de Cuidados Paliativos del Hospital Txagorritxu - Responsable
13:00 - 14:00

Round table: “La situación de los cuidados paliativos en la Comunidad Autónoma Vasca“

  • Nere Erkiaga Laka | Hil Argi Elkartea - Zuzendaria (Moderator)
  • Iñaki Peña Bandrés | Arrasateko Ospitaleko Zaintza Aringarrietako Unitatea - Arduraduna
  • Alberto Meléndez Gracia | Unidad de Cuidados Paliativos del Hospital Txagorritxu - Responsable

Directors

Nere Erkiaga Laka

Hil Argi Elkartea

Master in Death Studies at the University of La Laguna (2017), Master in Community Development and Participation at the University of the Basque Country (2007) and Postgraduate in Transmission of Basque Culture (2011) at Mondragon Unibertsitatea. She has experience in group dynamization and in death issues dissemination, and has launched the Hil Arte Bizi project for the empowerment of citizens and communities to face death. In 2018 she promoted the creation of the Hil Argi Elkartea association. This association offers, among other projects, “Gehiago Gara” initiative and “Bertso-ipuin bat zuretzat” for children who need palliative care. During the 2020-2021 academic year she collaborated in the Euskadi Irratia’s Faktoria radio program and created 41 chapters on topics related to death: https://hilargi.eus/irratian/

Speakers

Bittor Asteinza Blanco

He has experienced palliative care service as a father. He will share his experience hoping to be helpful to other people and in order to make this right known in society.

Iñigo de Noriega Echevarria

Pediatrician specialized in pediatric palliative care at the Niño Jesús University Hospital in Madrid, with a special interest and experience in pediatric cancer patients. He earned a Bachelor's degree in Medicine from the Autonomous University of Madrid (UAM), a Master's degree in Pediatric Palliative Care from the International University of La Rioja (UNIR), and a Diploma in Statistics in Health Sciences from the Autonomous University of Barcelona (UAB). He is also Academic Coordinator of the Master's Degree in Pediatric Palliative Care at the International University of La Rioja (UNIR). He has participated in the development of numerous articles and scientific publications related to pediatric palliative care and provides university training on Comprehensive Care in Pediatric Palliative Care and Evidence-Based Practice.

Nere Erkiaga Laka

Hil Argi Elkartea

Master in Death Studies at the University of La Laguna (2017), Master in Community Development and Participation at the University of the Basque Country (2007) and Postgraduate in Transmission of Basque Culture (2011) at Mondragon Unibertsitatea. She has experience in group dynamization and in death issues dissemination, and has launched the Hil Arte Bizi project for the empowerment of citizens and communities to face death. In 2018 she promoted the creation of the Hil Argi Elkartea association. This association offers, among other projects, “Gehiago Gara” initiative and “Bertso-ipuin bat zuretzat” for children who need palliative care. During the 2020-2021 academic year she collaborated in the Euskadi Irratia’s Faktoria radio program and created 41 chapters on topics related to death: https://hilargi.eus/irratian/

Amaia Madariaga Zabala

She has experienced palliative care service as a mother. She will share her experience hoping to be helpful to other people and in order to make this right known in society.

Leire Markuerkiaga Olabe

She has experienced palliative care service as a couple. She will share her experience hoping to be helpful to other people and in order to make this right known in society.

Alberto Meléndez Gracia

He is specialized in family and community medicine. He holds a Master's degree in palliative medicine. He collaborates as a professor in the Master's in Palliative Care offered by the University of Basque Country (UPV) in conjunction with the Hospital San Juan de Dios of Santurtzi. He is an assistant professor in the Palliative Care course at the Faculty of Medicine of the University of Navarra. He works as a physician in the Palliative Medicine Team at the OSI. Araba; his current work focuses on supporting his colleagues in Primary Care at the OSI in providing home care to patients and families in need of Palliative Care. He was president of Arinduz – the Palliative Care Society of Euskadi from 2010 to 2023 and vice-president of the Spanish Palliative Care Society (SECPAL) from 2016 to 2021. In 2020, together with other colleagues and friends, he created the "Babespean" association, which seeks to promote and enhance care for the most vulnerable people, both within the family and in the community.

Nerea Ortiz Larrinaga

She has experienced palliative care service as a daughter. She will share her experience hoping to be helpful to other people and in order to make this right known in society.

Iñaki Peña Bandrés

Graduated in Medicine from the Complutense University of Madrid in 1995 and specialized in Internal Medicine at the Hospital de la Cruz (Barakaldo) in 2001. I began working in Palliative Care in 2010 at the Debagoiena Hospital (Arrasate-Mondragón). I worked in Home Hospitalization from 2012-2013 in Cruces and from 2014-2015 at the Goierri-Urola Garaia Hospital (Zumarraga). I was a member of the board of directors of Arinduz / the Basque Palliative Care Society from 2016 to 2023, and was on the organizing committee of the SECPAL 2018 international congress in Vitoria-Gasteiz. Within the international network of compassionate communities, I have been a member of the team for the "Zarautz, Herri Zaintzailea" initiative since 2018. In the audiovisual field, I have worked as a screenwriter and director on the documentaries "Aulki Hutsak" and "Mendian hil. Hirian hil" (Arteman, 2013 and 2020) and on the play about grief and violence "S(u/a)minetik bakera" (Arteman, 2017). Master's degree in Palliative Care from UVic-ICO (2023-24). I have been writing for the blog "Osatzetik arintzera" since 2011

Jesús Sánchez Etxaniz

Pediatrician specializing in pediatric palliative care and head of the Home Hospitalization and Pediatric Palliative Care Unit at Cruces University Hospital. He teaches on the Master's Degree in Pediatric Palliative Care at the International University of La Rioja (UNIR), the University-Specific Master's Degree in Comprehensive Palliative Care at the University of the Basque Country (EHU/UPV), and the Master's Degree in Early Intervention, Home Care, and Palliative Care at the University of the Basque Country (EHU/UPV). He is a member of the Development Group and the Advisory Committee of the Basque Country Palliative Care Plan 2023-2027, developed by the Department of Health of the Basque Government.

Registration fees

Face-to-faceUntil 01-07-2025
87,00 EUR
74,00 EUR
61,00 EUR
25,00 EUR
74,00 EUR
74,00 EUR
22,00 EUR
0 EUR

Venue

Miramar Palace

Pº de Miraconcha nº 48. Donostia / San Sebastián

Gipuzkoa

43.3148927,-1.9985911999999644

Miramar Palace

Pº de Miraconcha nº 48. Donostia / San Sebastián

Gipuzkoa

Sustainable development goals

Agenda 2030 is the new international development agenda approved in September 2015 by the United Nations. This agenda aims to be an instrument to favour sustainable human development all over the planet, and its main pillars are the eradication of poverty, a reduction in equality and vulnerability and fostering sustainability. It is a unique opportunity to transform the world up to 2030 and guarantee human rights for all.

Sustainable development goals

3 - Good health and well-being

Guarantee a healthy life and foster the well-being of all people of all ages. Key issues: universal healthcare coverage, sexual and reproductive health, reduction in the number of road accident casualties, pollution and chemical products, reduction in maternal and neonatal mortality, the end of epidemics such as AIDS, combating hepatitis and other water-borne diseases, drug and alcohol prevention, control of tobacco.

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3. Health and well-being